Tag: HSAwareness

  • Hold On or On Hold?

    Hold On or On Hold?

    Sometimes I feel like my life is on hold. You see HS is holding on for dear life and there are times when I (yes me) feel defeated. Today is one of those days. When you are in pain and unable to function, there is a lot of time to think about things. Even things…

  • Wakanda Forever! Not Just This Weekend!

    Wakanda Forever! Not Just This Weekend!

    HS be damned. You did not win! I did. I have been looking forward to the arrival of Black Panther since last year. Matter of fact, I think that is when I purchased my prescreening event ticket. It’s hard for me to plan anything because HS is very unpredictable. I decided to let the chips…

  • (Insert Colorful Verbage)

    (Insert Colorful Verbage)

    When I was thinking about a title for my post, all I could think of were words that were not appropriate and since my mom reads my blog, I decided against it. So I decided to let all of you use your imagination. Pain is as real as it gets. If I don’t actually say…

  • There Is A Point To The Pain….

    There Is A Point To The Pain….

    I read something funny online the other day about having everything going the way you planned. It read “each time I have all of my ducks in a row, one of them waddles off.”  I laughed and was testifying to the joke until I read one that accurately described me at the time, “I don’t…

  • Bad Flare Life….

    Bad Flare Life….

    What did I do different? Was it a different food or ingredient? Did I wear a different material or was it just stress? Then the ugly realization that this is my life with HS just hit me. I have a cyst the size of a lemon on my abdomen. I woke up to this surprise…