Category: HS Life

  • It’s Good to See You!

    It’s Good to See You!

  • Going Through It, To Get Over It!

    Going Through It, To Get Over It!

    Hello to all of my favorite readers out there. Thank you for stopping by. I am so happy you are here! I hope you are feeling good today. Guess what? I am!  No, doctors have not found a cure for HS this month. I know like everything else, this is temporary, but I am going…

  • Hold On or On Hold?

    Hold On or On Hold?

    Sometimes I feel like my life is on hold. You see HS is holding on for dear life and there are times when I (yes me) feel defeated. Today is one of those days. When you are in pain and unable to function, there is a lot of time to think about things. Even things…

  • Wakanda Forever! Not Just This Weekend!

    Wakanda Forever! Not Just This Weekend!

    HS be damned. You did not win! I did. I have been looking forward to the arrival of Black Panther since last year. Matter of fact, I think that is when I purchased my prescreening event ticket. It’s hard for me to plan anything because HS is very unpredictable. I decided to let the chips…

  • (Insert Colorful Verbage)

    (Insert Colorful Verbage)

    When I was thinking about a title for my post, all I could think of were words that were not appropriate and since my mom reads my blog, I decided against it. So I decided to let all of you use your imagination. Pain is as real as it gets. If I don’t actually say…

  • There Is A Point To The Pain….

    There Is A Point To The Pain….

    I read something funny online the other day about having everything going the way you planned. It read “each time I have all of my ducks in a row, one of them waddles off.”  I laughed and was testifying to the joke until I read one that accurately described me at the time, “I don’t…

  • Take Off Your Veil, So They Can See Your Cracks….

    Take Off Your Veil, So They Can See Your Cracks….

    How many of us wear an invisible veil each day? So many of us are afraid to show others how fragile or vulnerable we are from day to day. We have to keep this stoic facade in fear of being judged in some way or another.  I will be the first person to raise my…

  • Bad Flare Life….

    Bad Flare Life….

    What did I do different? Was it a different food or ingredient? Did I wear a different material or was it just stress? Then the ugly realization that this is my life with HS just hit me. I have a cyst the size of a lemon on my abdomen. I woke up to this surprise…

  • Today I Chose My Scars…..

    Today I Chose My Scars…..

    The day was filled with doctor’s appointments and I worried about having the energy to get it all done. I was so anxious today, I drove to the old office building for my appointment. Maybe it wasn’t anxiety, maybe it was the trap music I was listening to while I was stuck in traffic for…

  • Do We Know How To Receive?

    Do We Know How To Receive?

    I remember when I was in my 20’s and people were constantly asking me if I were going to have more children. I heard things like ” When are you going to make Chris a big brother?” to ” You need to have more babies so you can have someone to take care of you…